Cystic fibrosis is a quiet global killer. One out of 20 Caucasians carry the genetic disorder. There are about 1,000 children born in America a year alone.
The month of May is awareness month for Miah in Wrangell.
I am asking if you can dedicate the month of May to Miah and also to wear the color purple.
Being a parent who has lost a child to CF, awareness is of utmost importance. Raising the profile of CF in the minds of all Americans because together a difference may be made for those yet. As the CF deserves it's 50 year anniversary much progress has been made in the fight against CF.
Despite this progress, lives continue to be lost everyday to this disease.
My beautiful, perfect, courageous girl. How I mourn for her loss in life and my own misery of her and I not being together anymore here on earth.
The CF Foundation continues its commitment to finding a cure or to control the disease.
Purple is now the national color of cystic fibrosis, so if you can please wear purple throughout the month of May in loving memory of my girl Miah.